Monday Mumblings

Monday was such a hectic day. We had our 1 year evaluation for the Regional Center. Holly was like, what are all these people doing here at the same time? We had both Katie and Sally in addition to Leela our Case manager, and then Joel came home from work also. We went through Holly’s reports. Some of Holly’s main issues continue to be her tone, her hip extension makes it harder for her to work, she is still sort of bent, her butt sticking out so it is harder for her to balance, and she isn’t bouncing on her legs yet, but aside from the isolated items that are severely lagging, she is in the 11-13 month range for Gross Motor Skills.

Her Cognitive and Fine Motor skills were both between 9-10 months, as are her Self help, and Social, with a few scattered skills as high as 14 months, and as low as 6 months in all areas. She has such a range it is difficult to pin down where she really is. For example she is beginning to stack donuts, but not stacking blocks, or scribbling, pointing, clapping. Her language was the “worst” section where her expressive is about 6 months and her receptive around 8 months, which is in par with what the Speech Therapist informally told me last week.

Leela agreed to recommend a feeding therapist, or at least an OT evaluation with a focus on Feeding, Oral Motor, and Oral Aversion. Also based on the informal Sensory evaluation that Sally completed we are going to keep an eye on her Sensory issues, including her Sensory seeking behaviors and her Oral Aversions.

In general it was pretty uneventful because I had seen all of the reports in advanced and worked with both therapist in writing them up and selecting goals. There are a few goals that Holly has not met yet that will be carried over to her next eval and the new ones will be added. I am assuming that the existing services wil be renewed and that we will get a follow up on scheduling the additional evaluation, and then I will continue to pursue Speech therapy, and while there is overlap, I really don’t want Holly to get delayed in language so I would like to have her see someone to help us help her stay current, or get current, but the feeding therapist should help her learn to use her tongue better so speech may naturally approve. Leela mentioned that she might be able to get a monthly speech consultant to work with the parents, and out insurance might cover it as well, but all will be reveled in about 2-3 weeks once I get the reports in. I hate the waiting game.

We are also having Holly’s hearing checked, just to make sure there aren’t any issues due to the fluid and ear aches and speech delays. So that’s about it on that update.

These pictures are from Monday night, we went to our positive parenting workshop. We tried to get Holly to stay in the Child care room, but it wasn’t so successful. She was ok when we first dropped her off, but that lasted only about 5 minutes and when she got Hungry it was too much to handle and she had a meltdown, I fed her and then Joel tried to bring her back in. He sat with her for a few minutes till she seemed to be having fun and playing but as soon as he walked out of the room she crawled after him and cried.

There was another almost 12 month old playing in the main room, so we brought her in, but she is much more mischievous then Seth the other little boy and she just wanted to crawl all over and get into everyone’s purses and knock over the coffee cups and I ended up sitting on the floor chasing her around most of the time. She did play with Seth some and they had fun and it was pretty cute. But then she had a poopie and got very cranky because her but is still soar. It is mostly healed, if I didn’t mention this she had a diaper rash that turned into a slight yeast infection and there is a section that it is a little raw so it is like open and bleeds if I try and rub and clean it, so it hurts her. Today it is almost gone but for that one red spot, so we have been treating it and letting her soak in the bath, but it is an uphill battle.

Class was pretty fun, but it was hard to both pay attention and keep an eye on Holly. I wanted to get some pictures of her Playing with Seth, but I got a picture of the mess she made instead.

Well not sure what else to update on… But this was how my week started.