This is Holly's Second Visit to the Mind institute. New research has indicated that a drug called minocycline may have a positive effect on Fragile X. Dr. Hagerman proposed a 1 month trial with Holly.
Basically Holly had a clinical visit, then met with the baby Research team, for several eye tracking tests. She also performed the Mullins and Vineland Assessments to give us a baseline of development. Holly would then take the medication for 4 weeks and repeate the tests.
In the Fragile X Knockout Mice, the positive effects were seen over 8 months later. Side effects could include a graying of her teeth, but it was likely that her adult teeth would not begin to calcify until Holly was 6 months old, so this was the perfect window of opportunity.
Holly would be the first Fragile X baby to try this treatment.
As part of the study, Mom was asked to keep a daily journal, which I will be posting here. I have enjoyed writing these so much, I will continue to do so.
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Untitled (written 8/30/2008)
11 months ago
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