Mind Institute

These are pictures from our last visit to the UC Davis Mind Institute. It was actually in the summer and we were scheduled for an Sleep MRI study. We stayed the night across the parking lot in the Kiwanis house which was nice. This is the playground and there was a play room. it was a good visit. Mommy also participated in a carrier study, they did IQ Testing and some other balance and tremor related testing. We met with Dr. Hagerman and did a Mullins test as well. It was decided that Holly would continue on the Minocycline as her development had made additional great strides and we were seeing no ill effects. Her visual processing was at the 52 month level and at the time she was only about 40 months. She got really tired during the testing because they started off at her last level but she was doing so well the 45 minute test was lasting over two hours and except for the fact that she was not tired and cranky she might have been able to keep going. Most of her skills were at the 34-36 month level so only a few months behind but where the really amazing this occurred is the time we went in previously she was at the 24-28 month level and only 3 months had passed giving the greatest improvement of 10 months during a 3 month period. We are supposed to be going back in the next month or so but now we are having trouble getting a research appointment, the next opening being in August. There may be a cancellation at the end of the month so I am hoping we will be able to take that slot. A few weeks ago Holly had Zinc and ANA blood tests done and it has been another 6 months on Minocycline so I want to do a follow up. I guess we will see.