Smiling Eyes

Smiling Eyes
Originally uploaded by vczdavis

Holly was born with a genetic disorder called Fragile X.

http://www.nfxf.org/html/what.htm

http://en.wikipedia.org/wiki/Fragile_X_syndrome

During her pregnancy, Mommy found out she was a carrier, and after an amniocyntisis, Mommy and Daddy found out that holly had a full mutation. This is a spectrum disorder and delays can be mild to severe, but are typically reduced in females.

On July 3rd Holly had her first visit to the UC Davis Mind Institute where she was seen by Dr. Randi Hagerman, a renowned researcher of Fragile X.

http://healthsystem.ucdavis.edu/mindinstitute/ourteam/faculty_staff/rhagerman.html

Holly is also recieving early intervention services which include PT for High Tone in her hips and arms, and an OT / IDS.

Holly has show only slight delays and on occasion has a burst of new skill that advance her past her developmental age. it seems there are some things that tend to get her stuck, then once she gets that skill several associated skills all come at once.

This picture is from the day before we went to Davis to meet Dr. Hagerman.

Look @ my New Outfit!

http://www.flickr.com/photos/vczdavis/2432183373/
Originally uploaded by vczdavis

When Holly was about 5 weeks Old her Oma Lisa and great Grandma Pat came to visit.

Holly was able to meet her Opa Steve when he came with Oma right after the 4th of July. Then her Granny and Great Granny came to visit in August.

Holly Zamira

Holly Zamira
Originally uploaded by vczdavis

Holly and Mom were released from the hospital after 6 days. Holly's Granny Jackie and Nanna Mary were visiting just after her birth and for the first 2 weeks of her life.

Holly Zamira and Daddy

Holly Zamira and Daddy
Originally uploaded by vczdavis

Holly was born on March 11th at 1:13 am she Weighted 8lb and was 19.5 inches. She is pictured here with her Daddy only a few hours after birth, while mom is in recovery taking the photo. Holly had many pictures posted on her website here:

http://hollyzzdavis.zigmont.com/

Holly Daze

This is Holly's Mom, and I am in a daze, I am so in love, and never thought that motherhood would suite me so well. Sadly I will be return to work after 24 weeks of amazement and simplicity and magic with my new baby girl. I started keeping a daily Journal about 6 weeks ago, and will post those here for archival purposes, and will then plan to keep up every few days writing little notes and memories about life with my wonderful Holly.